Cade Dillard and Cade Dillard Racing announced that the team’s door raffle that it conducted at the end of November raised $10,000 for 3-year-old Lydia who is fighting Sanfilippo Syndrome, a terminal brain disease.
Back in November, Dillard announced he was raffling off the special edition camo door for Lydia Rachal explaining in a video uploaded to his Facebook account, “This video is about a 3-year-old, local to our area here. Her name’s Lydia Rachal. She’s battling a rare illness.”
His wife Shelby then shared, “She was diagnosed last year with a rare disease called Sanfilippo Syndrome. It basically affects the brain and it is pretty much like childhood Alzheimer’s. By the time she’s 4-years-old it will start affecting her brain where she won’t remember anything. She won’t be able to talk. She won’t be able to communicate or do any of the things that she loves. She also will not be able to remember her family.”
“By December 1st, they’re wanting to raise $3.8 million. There is now a so-called treatment. They are doing a clinical trial. There’s about 15 spots,” she continued. “And then by the spring they need another $3 million to complete these clinical trials. Now, this does not mean that it is a complete treatment, but this is a start to get somewhere.”
The Cure Sanfilippo Foundation explains that the disease “also known as Mucopolysaccharidosis type III or MPS III is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life.”
The cause of the disease is “a single genetic defect, a single change in their DNA, that causes their bodies to lack a necessary enzyme. Because of the lack of enzyme, their bodies are unable to breakdown heparan sulfate, a natural cellular waste. Instead, their bodies and particularly brains become clogged with toxic levels, which causes a cascade of detrimental effects and ultimately death.”
There are currently no FDA-approved treatments or cures for the disease although there are currently clinical trials for some treatments such as enzyme replacement therapy and gene therapy.
In a new update, Dillard and his team shared that it raised $10,000 in the raffle, “We would like to thank everyone who participated in our door raffle to raise money for Lydia Rachel. We was able to donate $10,000 to the cause!!”
As for the winner, the door went to Justin Byles, “Our winner of the camo door panel drawing was Justin Byles! Thank you again to everyone who donated and shared this!”
Half of the funds were put up by S&S Fishing and Rental, Inc. Dillard had revealed in November that the company “offered to match up to $5,000 of what is raised for Lydia by CDR! Thank you Shane for this generous offer for a great cause. Please continue to share and donate if you feel led to!”
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