Cade Dillard and Cade Dillard Racing announced he and the team are auctioning off a special edition camo door to help raise money for 3-year-old Lydia Rachal, who has been diagnosed with Sanfilippo Syndrome.
In a video upload to Facebook on Sunday, Dillard said, “This video is about a 3-year-old, local to our area here. Her name’s Lydia Rachal. She’s battling a rare illness.”
His wife Shelby then shared, “She was diagnosed last year with a rare disease called Sanfilippo Syndrome. It basically affects the brain and it is pretty much like childhood Alzheimer’s. By the time she’s 4-years-old it will start affecting her brain where she won’t remember anything. She won’t be able to talk. She won’t be able to communicate or do any of the things that she loves. She also will not be able to remember her family.”
“By December 1st, they’re wanting to raise $3.8 million. There is now a so-called treatment. They are doing a clinical trial. There’s about 15 spots,” she continued. “And then by the spring they need another $3 million to complete these clinical trials. Now, this does not mean that it is a complete treatment, but this is a start to get somewhere.”
The Cure Sanfilippo Foundation explains that the disease “also known as Mucopolysaccharidosis type III or MPS III is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life.”
The cause of the disease is “a single genetic defect, a single change in their DNA, that causes their bodies to lack a necessary enzyme. Because of the lack of enzyme, their bodies are unable to breakdown heparan sulfate, a natural cellular waste. Instead, their bodies and particularly brains become clogged with toxic levels, which causes a cascade of detrimental effects and ultimately death.”
There are currently no FDA-approved treatments or cures for the disease although there are currently clinical trials for some treatments such as enzyme replacement therapy and gene therapy.
In order to help raise funds for Lydia’s clinical trials, Cade shared that they will auction off a door, “So us here at CDR, we want to do our part to help out this family. So what we are going to do is, most of you remember the limited edition camouflage car we did back in October. We’re going to give away a door panel off of that. To be eligible for it, you just have to make a donation. There’s no amount too big, too small. Everything makes a difference. We will comment our Cash app, PayPal, any way to contribute.”
The PayPal is [email protected] while the CashApp is $Cdillard97.
The drawing will take place on Tuesday, November 25th.
In an update, Cade Dillard Racing announced that “S&S Fishing and Rental, Inc. has offered to match up to $5,000 of what is raised for Lydia by CDR! Thank you Shane for this generous offer for a great cause. Please continue to share and donate if you feel led to!”
0 Comments